Why is Lyme Disease so Difficult to Diagnose & Treat?

So, the New Hampshire Senate's Committee on Health, Human Services, and Elderly Affairs has ignored the testimony of patients and apparently thumbed their noses at the NH House's HHSEA Committee's unanimous passing of HB 490. Instead of passing it, they have effectively pocketed the bill, apparently giving the state's Medical Association time to prepare additional arguments against it. However, they still have time to reverse this decision this week. Am hopeful they will.

The bill would establish a commission to study the role of clinical diagnosis and the limitations of serological diagnostic tests in determining the presence or absence of Lyme and other tick-borne diseases...and available treatment protocols, plus appropriate methods for educating physicians and the public about the inconclusive nature of prevailing test methods and available treatment alternatives.

Attached is a brief history of my own timeline of my battle with Lyme disease and other tick-borne co-infections (more information is available on my website). I am hoping this illustrates just how difficult this journey was for me, and is for so many others. Our question is WHY? 

Why is it so complicated to diagnose and treat Lyme disease?

I implore any Granite Staters who are concerned about passing HB 490 now to contact senators of the HHSEA committee before April 18. Thank you!

Tackling Flaws of Lyme Disease Tests & Treatment in Fiction

What do you do when your journey down the rabbit hole that is Lyme disease likely began with a misdiagnosis of ringworm, led to a possibility of advanced bladder cancer, morphed into several autoimmune disorders that required visits to a myriad of medical personnel, and finally, nearly a decade later, was correctly diagnosed as Lyme?

Perhaps, like many, you write a memoir.

Or you turn to the wisdom of Albert Camus and tell your story in a novel since, "Fiction is the lie through which we tell the truth."

Protagonist in I Cannot Play With You Fights for her Health

I've given my 50-year-old protagonist, Anna McGrory, a state director for a U.S. Senator from the Berkshires of Massachusetts, all of the exhausting, perplexing, and often painful symptoms of my own Lyme disease and its co-infections.

Anna travels from her home in Concord, NH, to the Berkshires, into Boston, and up to the islands off the coast of Portland, Maine, in this tale of intrigue. The story, which begins and ends on idyllic Cliff Island, Maine, features favorite local businesses such as Casco Bay Lines in Portland and Angelina’s RistoranteItaliano in Concord.

Cultural attractions also appear, including MASS MoCA and the Boston Symphony Orchestra, which are spotlighted in end-of-chapter summaries with links to Anna McGrory’sPinterest pages. Also featured is the Trustees of Reservations’ Field Farm in Williamstown, Massachusetts, which serves as the fictional U.S. Senator’s home.

I Cannot Play With You is scheduled for release Dec. 13, 2018, by Texas publisher Black Rose Writing. For more information, please visit the author’s website at GreenChairPictures.com.

Find I Cannot Play With You at these bricks-and-mortar stores: Gibson’s Bookstore, Concord, NH; Sherman’s Maine Coast Book Shops, Bar Harbor, Boothbay Harbor, Camden, Damariscotta, Freeport, & Portland, Maine; Cliff Island Store, Cliff Island, ME; MainStreet BookEnds, Warner, NH, and--thanks to the New Hampshire Writers' Project--at Toadstool Bookshop of Milford, NH.

Borrow the novel from the Pillsbury Free Library, Warner, New Hampshire, the Concord Public Library in Concord, NH, or the Cliff Island Library in Maine when it opens again in June 2019.

Online, I Cannot Play With You is available via the following retailers: Indigo (Canada); Barnes and Noble; Amazon; Black Rose Writing (Publisher)

Penning the six-word memoir

This year I've plunged into a practice of daily meditative writing. Or mostly daily. I embarked on this new journey one day as I was cleaning off my bookshelves, leaving my adjunct professor years behind while welcoming my new life as a writer. And occasionally teaching artist, especially now that I've been added to the New Hampshire State Council on the Arts roster.

While weeding through my vast collection of books, setting aside those I was certain I'd no longer need, I removed Writing Down the Bones by Natalie Goldberg. Later, sitting to read Pema Chodron and take some time to reflect and meditate, I noticed a book spine with the Shambhala Publications logo. Those who already know Goldberg's work and that of Chodron will know my instant excitement. I picked up the book, opened, and began reading. In that instant an entire new world of writing and meditating possibilities opened up to me.

I am onto a second book of Goldberg's now: The True Secret of Writing: Connecting Life with Language. In it yesterday I read about the six-word memoir.

Created at Canva.com.

Instantly intrigued, I grabbed my notebook, made grids, and wrote several. It's a fun word play that I used again today, penning: The bite of fresh ginger tea. It may not be revolutionary, but it was what I was thinking as I brewed green tea with fresh ginger for my husband this morning. I've not been a green tea aficionado, but have recently begun to develop a taste for it, so long as there is that sharp edge of fresh ginger root to spice up a warm cup or a glass of it cold.

As you can see from my graphic, I ended up expanding on the six-word concept until I had a handful of lines that together formed a memoir. It's a slice of who I am and who I'm becoming as I grow in my daily spiritual practice. I gladly share it with you, and invite you to try the six-word art form. I also recommend you consider launching your own daily meditative writing practice.